Tag: strong mums

  • It’s Here: Genuine Support For Strong Instagram Mums

    It’s Here: Genuine Support For Strong Instagram Mums

    It’s Here: Genuine Support For Strong Instagram Mums

    It's Here: Genuine Support For Strong Instagram MumsI’ve been pondering over the group idea for months. I'm not a fan of Facebook and I’m definitely not a fan of a Facebook group. I settled on having an Instagram group but wouldn’t have enough energ…

    So, I’ve been procrastinating all year about whether to start a support group for mums. Should it just be for mums with chronic illness or mental health problems? Should it be a group for mums with teenagers like me or mums with young children, as that’s where my expertise lies? Do I even want to have a group? 

    You see, I’m a member of a business growth membership and we’ve been told that having a group helps to build super fans; that having a Facebook group is a fantastic way to grow our business. The thing is, I’m not a fan of Facebook and I’m definitely not a fan of the idea of running a Facebook group. 

    I’ve had some awful experiences in Facebook groups and, as this weird year of 2020 has transpired, I’ve spent less and less time on the platform. I can’t cope with the moaning that occurs in lots of these groups. I don’t ever want to run a moany group, it’s just not me. I’d also need lots of help to run a Facebook group; another issue. 

    So I started thinking about all the Instagram Mums following me and knew that if I was going to start something, I needed to think outside the box. Instagram seemed a good place to start. So whilst November seemed to rush in and a second lock down in England slapped us in the face, I’d found a way to offer genuine support.

    This blog is part of the November Link Up kindly hosted by Sheryl Chan of A Chronic Voice. Please check out the other great posts in the link up.

    The prompts this month are: 

    • Incorporating

    • Experimenting 

    • Sanitising

    • Launching 

    • Writing

    Incorporating

    As I said, I’ve been pondering over the group idea for months. I know I wouldn’t have enough energy for running a group on my own, something my business peers don’t usually have to consider in the same way I do (I have to keep reminding myself this, due to comparisonitis). Incorporating this into my life was going to be a challenge. 

    The first challenge was finding the support I needed. I needed to find mums I could trust but I couldn’t think of any who had the time or energy to put into a traditional support group. I certainly didn’t have the energy to monitor a group on my own. Knowing this helped me realise that a traditional group really wasn’t for me! 

    I love the feel I get from the Mums who are part of the community following over @strengthoftears_mum. This mostly consists of what I call frazzled mums, a term incorporating mums who are stressed out, have chronic illnesses, anxiety or depression. Despite all this, the positive vibe and support is there when someone needs a rant or has a flare.

    I wanted to bring this energy into my group so I settled on the idea of having an Instagram group. I still needed support to help me get this idea off the ground. They helped me plan as we chatted through ideas. Incorporating self care was particularly important for us all.

    I needed a name. I didn’t want to use the term frazzled mum for this group so incorporating ‘Strong Mums’ from my mailing list name seemed ideal. I use this term as it highlights the strength we build as we face the challenges of motherhood; I want the community to empower women!

    If you’re a mum wanting support and access to my free resources sign up to my Strong Mum’s Mailing List today.

    Motherhood is the biggest gamble in the world. It is the glorious life force. It’s huge and scary-It’s an act of Infinite optimism.

    — Gilda Radner

     Experimenting 

    I knew I’d be experimenting with choosing Instagram for this, but it’s my happy place on social media so it makes sense to me. I don’t find Instagram as moany as other platforms so making this a space for mums to meet other Instagram mums seemed the right choice for me. I set about researching the idea and trying to explain my plan.

    Before starting this I wanted to create a logo, using the teardrop from my Strength Of Tears brand, experimenting with my branding colours. I shared these with my peers in my business growth membership and their comments helped me link my website branding to the group.

    Using Instagram as a platform for a group is experimenting, as this won’t work the same way as a traditional group. Making this group for the audience I already had seemed too restrictive so I’be now broadened the group to mums with kids of any age, including step-mums and carers. 

    I have to remind myself it’s fine to keep experimenting with how the group will run as it builds momentum, and how we grow as an engaged community who lift each other up. I’m excited to be creating a space for Instagram Mums to connect and empower one another.

    I’ve been in similar networking groups but I haven’t come across this. Experimenting with creating a support group in a private group chat, makes me excited by the potential it has to be a positive, inclusive and supportive space.

    Image on how to join the Instagram Strong Mums  Social Support Group. Details of  how to join are on this image, click the link and write 'I'm In' on the post. Other instructions say to follow the site and check your DMs for details

    Join on Instagram

    All Mums welcome, just click on the link to head to the Instagram post that gets you into the group!

    Sanitising

    In the year of constantly needing to sanitise, this group has been a welcome distraction for me and I hope this continues under lock down number 2. I hope that the group will provide a welcome distraction for my growing community. Hopefully it will become the place people turn to over the next few weeks and months. 

    Our small following is already engaged and as soon as this recent lock down was announced I had mums in the private group chat sharing their concerns and supporting each other. 

    I want this group to provide genuine connections. I see us offering regular mental health check ins as part of our self care approach, especially as we head to the end of a very tough year. I want mums to be able to find sanctuary from the world in our private group chat, whether they’re kids are tiddly or grown. 

    Mother’s give up so much, so that their children can have so much.

    — Catherine Pulsifer

    Launching 

    Launching this new community has gone better than I hoped. I decided to bite the bullet about 2 weeks ago, kind of by accident, and we already have over 60 followers. It was a quiet launch as I had no idea I was doing it until I was at a zoom networking meeting and I blurted it out, hoping people would spread the word.

    So, I had to launch the account that day! This stopped my procrastination but I had no idea how others would react. Mums are interested but I think many are so used to Facebook that using Instagram is initially confusing. I know it’s not everyone’s cup of tea, but I’m glad I just went for it. 

    For us to grow, I need the Instagram mums who’ve joined the community to tag their mum friends. As I’ve said, the group is for mums from pregnancy to flown the nest. We have mums with babies, teenagers and children who have their own kids in the DM support group. We’re there to lift each other up and the support group is ideal for this.

    Now is an important time to have a support system and as lock down continues it will be increasingly important, as mums face new challenges. I also know that not everyone reading this sees themselves as Instagram Mums but I bet you would really benefit from connecting with others, even if you think you’re not tech savvy. 

    I plan on launching our Join Us day on a Thursday and I’ll continue launching new ideas as the group grows so that there’s something for everyone. [Over time the page became too much for me to manage and so the group is now hosted on my main account.] If you want to come and explore then visit Strength Of Tears_Mum’s ‘JOIN US’ post.

    Writing

    Writing posts for the group will involve changing the way I plan my social media and my style of writing. I also need to make sure I’m not giving myself too much extra work [I did so you can now follow everything from my main account]. 

    My biggest challenge will be writing clear instructions for the mums joining in. They will be asked to share the post to their stories to help spread the word. This sounds easier than it will be; my brain doesn’t like staying focused. I expect to be re-writing it a few times to get it right. 

    With the new challenges, I’ll be writing about topics others have a say in, mainly what my audience want to discuss. This could be news or awareness events or writing more general check in posts. The DM’s additional support group will be monitored for consistent support. 

    How To Join My New Free Instagram Mums Group

    I hope that if you’re still here, you’re a mum interested in joining us. We’d love to have your support in building this community and empowering women. It’s a great place to meet other mums and if you want a support system you’re welcome to join our Strong Mums Social Support in our private DM Group.

    We’re on a mission to connect as many mums as possible. All mums are welcome, including step-mums and carers, whatever age your kids are. Women running businesses that support mums in finding solutions are welcome, however, selling is not. This group lifts mums up so they feel strong enough to face life’s challenges. 

    It’s not a follow loop or a follow to unfollow page, anyone doing this will be removed. You don’t have to follow everyone or a certain number of people on any of our posts. 

    Do you want to be part of this network of Instagram mums supporting each other? 

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    I want to support mums any way I can, especially around self care, so as well as these book suggestions, I have created a free, simple step by step well-being planner to help you stop chronic illness crushing you!


    How do you like to connect online? What do you look for from a support or social group?

    Tell me in the comments.  

    Stay safe,

    L 💜

    P.S I can help you put yourself as a mama first by creating personalised well-being strategies that work around your life. My free well-being plan will help prioritise your own needs, such as building connections, making time for self care or doing the things you love. Or if you want be the first to know when my well-being journal launches sign up to my Strong Mums mailing list here

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    ✋ Hey there! I hope you’re feeling stronger now. If so, sharing the love will help me help mums with chronic invisible illnesses ⬆ Hit one of those sharing buttons or save these images to Pinterest and I will do a bed-bound happy dance – there’s an image for you!

  • How To Overcome Genuine Anxiety Caused By Mum Guilt

    How To Overcome Genuine Anxiety Caused By Mum Guilt

    How To Overcome Genuine Anxiety Caused By Mum Guilt

    Feeling guilt as a mother is surprisingly common. Most often thinking we’re not with our kids enough or that we’re getting it wrong. Add to that, thinking we’re not Instaworthy or comparing what friends are doing, and we have a problem!  

    When I was first at home with chronic illness I’d do more than I should because I felt I wasn’t a good enough mum. This would make me feel physically worse and anxious. The biggest adjustment is my own expectations of a mother’s role. 

    I’ve since worked on being more mindful by journaling about my feelings, such as missing family time or comparing to other mums. This has given me strength to squash meltdowns by not listening to the evil guilt goblin sitting on my shoulder. 

    Click the image to buy this journal from Not On The Highstreet

    I’m sharing my experience and understanding of how mum guilt causes anxiety. 

    • What is Mum Guilt? 

    • Common Concerns Mother’s Have  

    • 7 Practical Ways To Overcome Guilt Meltdowns  

    • Conclusion

    I’m not a medical professional, this is my personal opinion. Some activities may trigger mental health conditions and I discuss anxiety and depression. See a professional if needed. Please see my full medical disclaimer on the policies page.

    _Disclaimer this blog post contains affiliate links and any purchases made through such links will result in a small reward for me and my crafting habits. Oh and there’s some free recommendations too, Im nice like th.jpg

    What Is Mum Guilt?

    Mum Guilt is a term used to describe the inferiority a mum can feel. Guilt is described as a feeling of worry or unhappiness, explaining why so many mums feel this way. But guess what? Mums aren’t perfect, so all mums feel guilty at times, real or not. 

    Mum guilt is most often experienced by working mums. But it’s as pervasive, if you live with anxiety or depression or have a chronic illness or disability. If your needs hold you back in your parenting role, you can feel guilty. So I wrote this poem.

    Get your free wellness plan to balance your actions as a Mum and focus on making the best memories to reduce mum guilt. Click on the image to download.

    I don’t have it all sussed regarding mum guilt. But I’ve learnt not to worry about what may have been and focus on what I’m feeling now. I find it hard not to be with my family so a lack of control when I have a bad day makes it hard to put anxiety aside. 

    My boys were 10 and 11 when I became so unwell I needed support. I felt unable to do what I saw as the role of a mother. I felt I was doing ‘it’ wrong and the ‘I shoulds’ held me hostage in a dark place where I had no control. Anxiety took the wheel! 

    I’ve worked really hard to manage my anxiety so it couldn’t take full control over me and eclipse what I needed to focus on to be the best mum I could. Download my free anxiety busting exercise guide with amazing grounding techniques to reduce anxiety below.

    The pressure we put on ourselves to be the best is a big factor but we can’t be perfect. If you’re worrying about this, then you’re a great mum already. Yes your kids need you to be there but ultimately they need you to be you!

    The very fact that you worry about being a good mom, means that you already are one.

    — Jodi Picoult

    Common Concerns Mother’s Have

    All mums have at least one of the concerns below and I’m sure there are many others. If your actions ensure your child is protected, you don’t need to worry. If you are, offload to your trusted circle to help you deal with any negative feelings.

    • Feeling torn between working or staying at home 

    • If you’re neglecting the kids by looking after yourself 

    • Trying to keep the house clean and tidy

    • Missing the child’s milestones 

    • Having high expectations of yourself

    • Getting cross with them when it’s not their fault

    • Not knowing what your role is

    • Spending time with your kids

    • If the kids are active and healthy enough

    • If they have consistent boundaries 

    • What your child eats and drinks

    • If you have a flare or go in to hospital

    • What you put on hold to be a mum

    • Not being able to play because of pain

    If we bury how we feel about these concerns we may react strongly unexpectedly. The intensity of this can send you into meltdown so we need to be mindful of our self-talk. Find out more by listening to Brené Brown’s Book – The Gift of Imperfection.

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    The high expectations I have of myself despite being ill, means I can miss that guilt goblin manipulating my self-talk. I’m more aware of him sneaking past my protection and can interrupt him before it leads to an anxiety attack.

    I was always fraught with guilt and it’s such a waste of an emotion. It keeps you out of the moments of being where you are

    — Kyra Sedgewick

    7 Practical Ways You Can Beat Mum Guilt Meltdown.jpg

    7 Practical Ways You Can Beat Mum Guilt Meltdown

    Having practical ways to beat mum guilt will help you avoid meltdowns. Being more mindful of these thoughts and emotions can help you have more balance in your life.

    Your emotions are the slaves to your thoughts, and you are the slave to your emotions

    — Elizabeth Gilbert

    1. Have a process for dealing with your emotions

    Your personality type and parenting style will direct how you work through your feelings. Having a method at your fingertips to use you can break the cycle of negative thinking. Here are a few ideas for processing these thoughts. 

    • Journaling – write your thoughts but find a positive note to end on.

    • Change perspective – look at it from a neutral viewpoint, what do you see? 

    • Let yourself feel by doing a visualisation. Read about these meditations here.

    • Be present – what behaviours do you notice? What’s triggering them? 

    • Write a note or record a voice memo of 3 things you’re grateful for.

    • Distract yourself with short mantras or activities like grounding techniques.

    5 senses grounding exercise.jpg

    Anxiety

    Download my simple anxiety exercises in my Strong Mum members free resource area.

    2. Listen to your child

    This may sound obvious but I mean actively listening. To do this: 

    • Give your child your full attention by stopping what you’re doing.

    • Look at your child as they speak. 

    • Let them talk at their own pace even if it’s tempting to get on with housework.

    • When they finish, repeat what they said back to them.

    • Add details about how they might be feeling and why.

    If you and your child aren’t used to this practice, you could role-play it beforehand so your child knows what you’re doing. For more information on active listening read this article. 

    If you’re struggling with this concept, imagine how you feel when you can’t get your point across. You’d feel frustrated at not being heard and despair of it when you get unwanted advice instead of empathy.

    3. Search for the source 

    Finding where your feelings of guilt come from can be a game changer. It isn’t a one and done solution, it will take you working at it! Having a solution focused approach means you don’t get stuck on the problem as you’re working to solve it. 

    Read more about using a solution focused approach in my blog about strategies for coping with anxiety. Take these steps to start you off.

    1. Relax and think about your strengths as a mum.

    2. Write or draw about your qualities as a mum and what your day looks like. 

    3. Highlight 1 or 2 problems and all the positives you have. 

    4. Create a goal for one of these problems based on your strengths. Break the goal down into steps to work on over time. 

    Our parenting is shaped by our childhood, often wanting to improve on or avoid negative memories. We were aware of this but my brain disease led to a breakdown of communication but we restored this and developed resilience and empathy. 

    My chronic illnesses affected how we worked together as parents. We went to family therapy which shaped our new approach of active listening and being solution focused. We developed a teamwork approach, making celebrating wins priority.

    4. Stop comparing yourself to other mums

    The way most of us share our lives on social media, with mums showing images of a perfect life and creating a page for their littlies. Most only show rainbows and smiles with ‘DM to collab’ info. I’m not knocking this, it’s a great if you want that. 

    Even without social media we’ll compare our parenting to others but comparisonitis is at dangerous levels. The pressure about how we look and act as a mum has been linked to the steep rise in mental health problems. 

    We need to be mindful of our behaviour around other mums and conscious of the message we’re sharing when we post on social media. Instead of forcing your lifestyle on others, lift each other up, sharing each other’s joy. Don’t be that mum! 

    5. Declutter for less pressure 

    I do a self audit a few times a year to protect myself. When I became ill, I let people in who hurt me, people I thought understood me and chronic illness. This increased my anxiety levels and I’m still wary. Ask yourself these questions every 2-3 months: 

    • Who has been there to support me recently? 

    • Who have I contacted and not heard back from? 

    • Have I checked to see if they’re okay? 

    • Have friends with chronic illnesses been mutually supportive? 

    • How long has it been since hearing from long term friends? 

    • Have those you’ve confided in been there?

    Think carefully before taking action, remembering some people don’t know how to handle chronic illness. Can you show them? To beat mum guilt your circle needs to be trusted and give honest advice.   

    1. Text those you believe to be trusted friends, check they’re okay. Chronic illness or mental health problems can make us forgetful so be sure your decisions are solid. 

    2. Narrow your trusted circle to your partner, supportive family members, a few proven friends and your doctor/therapist

    3. Remove friends on social media and who don’t support you or your family or haven’t engaged with you. 

    4. Delete phone contacts who you haven’t heard from in 12-18 months. 

    This collection of books are available from The Book Depository. I recommend these for building self-esteem and a sense of purpose. Using journaling exercises and reading to understand your purpose and role, will help you beat Mum guilt.

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    6. Be kind to yourself 

    Either heading back to work after maternity leave, being a stay at home mum and/or have chronic illnesses or mental health problems will leave you conflicted. Working late or staying in bed has repercussions but this is the time to be kind to yourself. 

    Remove ‘should’ from your vocabulary! Caring what others think you should be doing with your child, takes away from what you offer uniquely as their Mum. Know that you are enough and belong as a loved mother to your child.

    When we can let go of what other people think and own our story, we gain access to our worthiness—the feeling that we are enough just as we are and that we are worthy of love and belonging. Brené Brown 

    — . Brené Brown

    We were never meant to raise children single handed so reach out for support. If you can’t play during a flare, it’s okay. If you use a childminder, it’s okay; you deserve a break. You’re worthy of being the best mum for your kids and to be loved for that! 

    7. Allow yourself time for you

    You were someone before you were a mum, and that person is still relevant. You’re the glue that holds everything together, even if someone else adds the sticky tape, so you need to be healthy. Mum guilt can stop you taking care of yourself.

    I remember the guilt being amplified when I had depression and anxiety from grieving the life I’d had. I was so hard on myself for it but 6 years on, my kids don’t remember, Time for yourself is a priority and I don’t mean 5 minutes in the loo on your own. 

    You deserve spa treatments and meeting up for coffee without the kids. You deserve weekends away, date nights and a long soak in the tub. Being a mum is hard so you need balance. You need to enjoy the sun, laughter, sticky hands and puddle jumping. 

    Conclusion 

    Guilt is something I’ve carried all my life but letting myself feel it has shown my strength. I’ve worked hard by using my techniques for coping with anxiety. The more I focus on my strengths as a mother I can beat any meltdowns the guilt goblin brings.

    My life coach has helped me work through my mum guilt. As a mum you need to be memory maker, entertainer, caregiver and chief giggler. Carrying guilt can stop you being these.

    Limiting the influences in my life is a work in progress but taking control of it has helped when my anxiety is high, helping me beat mum guilt meltdowns. This includes time for pursuing my own interests because my children need me to be happy. 

    Now my boys are older, they can talk to me about their feelings because we’ve made this a priority so we can all feel heard. This has ensured they know I love them unconditionally which in turns shuts the guilt goblin up and helps you beat your guilt. 

    I can help you do this with my free wellbeing planner that’s perfect for this. Sign up to my Strong Mum’s mailing list for access to this free download by clicking below.

    This can help you feel valued by your family and even more so, yourself. You want your kids to accomplish their dreams and beat things holding them back. Who better than you to be a role model for drive and resilience in pursuing their passions?

    What makes you feel guilty? Tell me in the comments.  

    Remember that if you’re asking about mum guilt, you don’t need to worry. You are a good mum!

    Stay safe,

    L 💜

    P.S I can help you beat mum guilt by creating personal wellbeing strategies using my free wellbeing plan. This will help prioritise your own needs, such as building self-esteem and making time for self care or doing the things you love. Or if you want to be on the waiting list for my Journey To Balance Journal, sign up to my mailing list at the bottom of this page. ⤵️


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    ✋ Hey there! I hope you’re feeling stronger now. If so, sharing the love will help me help other mums with chronic invisible illnesses.⬆️  Hit one of those sharing buttons or save the images to Pinterest and I will do a bed-bound happy dance – there’s an image for you!

  • A Lonely Challenge: IIH Headache And A Baby

    A Lonely Challenge: IIH Headache And A Baby

    A Lonely Challenge: IIH Headache And A Baby

    A Lonely Challenge: IIH Headache And A BabyFor IIH Awareness Month, Amy has written this amazing guest blog about her experience as a 24 year old, newly single mum of a one year baby boy, recently diagnosed with Idiopathic Intracranial Hypertension …

    An Introduction To Amy’s Guest Blog

    For IIH Awareness Month, I want to raise awareness about Idiopathic Intracranial Hypertension or IIH through blogs with a range of patient voices. I’ve asked mums from the IIH UK Facebook support group to raise money for IIH UK, a charity supporting IIH patients and raising awareness.

    Please use the button below if you would like to donate to IIH UK through their Justgiving page.

    Amy has written an amazing guest blog about her experience as a 24 year old mum of a one year baby boy. She’s just moved back to Scotland to be closer to her family after being diagnosed with IIH fairly recently. 

    If you would like to understand  the symptoms, diagnosis and treatment of IIH from the perspective of other patients for IIH awareness month, read this blog post.

    She experiences crippling pain, with each severe Idiopathic Intracranial Hypertension headache which led to her diagnosis. However IIH is so much more than just a headache so here is Amy’s story, in this open letter to IIH.

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    An Open Letter For IIH Awareness Month

    To my IIH for finally teaching me how to let go. 

    You can’t hold on to anything when you’re awake every morning with an excruciating headache that can only be described as brain freeze mixed with a car crash.  

    With every day, the hypertension headaches grew stronger and longer. I wasn’t present in my life for weeks, I was zoned out on autopilot trying to protect myself from the pain. Nothing worked. I tried everything from pain killers to mindfulness to not eating this and that.

    Then came the whooshing (pulsatile tinnitus ) and blurry vision that fearfully shook me back into the present.  I wasn’t just in pain anymore. I was scared. Really really scared. I knew something was very wrong! I googled my symptoms in every free second I could and my results told me I was either  “faking it” or I had a brain tumour.

    When my phone rang, (sort of like the way my ears did when I got my first headache), my GP told me I had ‘Idiopathic Intracranial Hypertension’. Luckily I’d done my research, so at that point I knew what she knew. Find out what IIH is by reading this IIH UK leaflet.

    However I didn’t know that my boyfriend would end our relationship and move out of our family home leaving me alone with our 8 month old baby son and the lonely challenge of my new diagnosis and that Idiopathic Intracranial Hypertension headache. 

    No one knew I’d need a lumbar puncture in a hospital which had had many covid-19 related deaths or that the procedure would make me so ill I’d had to be driven 300 miles, to be admitted to hospital in Scotland near my family home. 

    The lumbar puncture hurt almost as much as when my partner left me, the pain was deep and repetitive. Read about lumbar punctures here. https://www.nhs.uk/conditions/lumbar-puncture/ It made me question what was wrong with me and why, like always, things could never be easy? 

    I screamed and howled that night as my high pressure hypertension headache was traded with a low pressure headache. My sister held my hair while I vomited almost in unison to my sons midnight cries. How I wished being a mother was the least of my problems.

    They Thought I’d Be Okay.

    They thought I’d be okay but if it had been possible, I’d have easily spent the rest of my life in bed hiding from the world, silently taking note of every little change in me. With every bout of nausea the panic set in and I often found myself reliving the pain of the Idiopathic Intracranial Hypertension headache I felt when I was first diagnosed. 

    They thought I’d be okay but with every visual disturbance I winced at the thought of losing my ability to care for my son, drive or even completely losing my sight. It’s very easy to see why depression is a symptom of IIH. I consider myself extremely lucky that I do have good days as I remember a time, not so long ago, when I didn’t.

    By the time I had to quit my job, I’d started to regain strength. I felt proud that I’d managed to keep myself and my son alive and that we had a wonderful week in Scotland. Looking back it was a parallel universe to what I’d been used to. 

    The days were bright, the family home was busy and the sound of my thoughts no longer rattled off of every surface. I became determined to prove to myself and everyone else that I could fight one of the hardest fights I’d ever faced. 

    I lost 10kg in weight in less than a month. Everyone congratulated me and acted as if, by magic, all my problems would be solved and I’d be okay. Stereotypicaly women are somehow (wrongly) convinced that the more weight they lose the more successful they’ll be. 

    Unfortunately when you’re overweight with an IIH diagnosis, you are even more convinced that losing weight will be a miracle cure. Read more about views on IIH and weight loss here.

    Everyone thought I’d be okay but bed time was the hardest. I recoiled at the sound of my son’s screeches which threatened an Idiopathic Intracranial Hypertension headache. Thankfully we gradually found a routine along with our ability to self soothe. 

    Here I was, a 23 year old newly single, unemployed mum with an 8 month old baby and 3 chronic health conditions; living three hundred miles away from my family and friends. So I’m grateful to the friends who were always a phone call away, even though no one truly knew what I was up against. 

    A New Perspective - My IIH Headache Taught Me To Be Strong 1.jpg

    A New Perspective – My IIH Headache Taught Me To Be Strong

    My Idiopathic Intracranial Hypertension headache and friends taught me to be strong. Not relying on the strength of others is the greatest gift I could have given myself. Fighting everyday just to survive is so, so tiring but I started to reap the rewards and found a new perspective. 

    Whilst becoming a single mother is the last thing anyone would wish upon themselves, over time, it has given me back the independence and self belief I’d lost during pregnancy. 

    Nothing is more rewarding than the bond I have with my son. We are inseparable. Things are different now that my son and I get out of the house whenever we can. I do this because I want to, not because I’d feel like a bad mother if I didn’t. However, I think I’ll always live with guilt and what if’s.

    I’ve realised that I am the best mother for my son and that as long as I don’t stop fighting, however much I want to, little else matters. Doing the dishes doesn’t matter, how I look when I step out the door doesn’t matter and thinking “I’ll be happy when…” doesn’t matter.

    Now I try to create as many meaningful memories as possible for us. Sometimes this will be as simple as going to the supermarket and engaging with as many people as possible. Sometimes it will be playing together and having cuddles on the sofa. 

    IIH has taken so much from me that I’m not sure I’ll get back. I’m troubled by confusion and concentration issues from brain fog and that pervasive Idiopathic Intracranial Hypertension headache. My love of knitting, baking, reading, colouring and watching TV & film is all just not possible for me right now. 

    Instead I found comfort in self care, something I did prior to my diagnosis but from my new perspective, I truly appreciate it. I love painting my nails, using face masks and taking long baths. 

    A New Perspective - My IIH Headache Taught Me To Be Strong “My IIH headache and friends taught me to be strong. Not relying on the strength of others is the greatest gift I could have given myself. Fighting everyday just to survive is so, so tiring …

    How I Feel Now It’s September

    We’ve just celebrated my son’s 1st birthday. It’s been six months since being diagnosed and it’s IIH awareness month. I don’t know how I feel about any of these things and that’s okay. 

    Still so many thoughts turn in my mind. How is my baby 1 year old already? Why have I spent half of his life fighting, almost literally, to keep my head above water? What’s the next challenge, now that my baby and I are here? 

    I do know that for every second I’ve fought, a second of my son’s love is earned. I do know that there are mums out there just like me, laying awake at night exhausted. I do know that we’ll both be praying tomorrow will be different, even though it rarely is.

    A part of me wants to roll up IIH awareness month into a very small ball and chuck it tremendously far away. A part of me wants to leave this challenge behind me and my son and not have to fight this anymore.

    However, I know that we should be taking this fight to the hills. We should be taking it to the roof tops and everywhere IIH has taken us. We must tell everyone we can about the fight we face every day, with IIH headache, the pressure, the pain and the vision problems we all face. 

    As diagnoses are rapidly increasing, we need everyone to know how living with this brain condition affects us. We need to raise awareness of how we’re up against losing our sight and how poor the quality of our lives is. 

    Sometimes it feels like the specialists don’t believe us when we describe how painful the pressure of an Idiopathic Intracranial Hypertension headache is. When doctors don’t understand how frightening this condition is, it can be frustrating. IIH is not immediately life threatening but it does threaten our way of life.

    Amy 💚💙


    A Final Note From Laura

    Thank you so much to Amy for sharing her story for me to share. If you’d like to read more of what Amy has to say, she’d love you to follow her on Instagram @amylrobbo

    I’d like to finish this insightful blog post by sharing some information about how to support IIH UK. If you’d like to read my personal story about IIH please click here. https://www.strengthoftears.com/mums-blog/my-chronic-pain-conditions

    IIH UK wishes “to preserve and protect the physical and mental health of sufferers” as well as carry out research and  educate both the public and “the medical community in particular on the subject of IIH.” To enable IIH UK to do this please follow the instructions below. 

    To help us raise awareness please share this blog on your social media with friends and use #IIHAwarenessMonth. We’d love to be able to raise money for IIH UK so..

    •  If you share this on Facebook please add the donate button and choose IIH UK

    • If you share this on Twitter or elsewhere please use this link to the justgiving page, asking your followers to donate https://www.justgiving.com/iihuk/donate/ 

    Or donate now by clicking the link below and making your one off donation!

    Stay safe,

    L 💜

    P.S

    If you have IIH or any other chronic illness or you’re suffering from depression or anxiety, I can help you create better wellbeing strategies using my free wellbeing plan. This will help prioritise your own needs, such as better sleep patterns, self care or doing the things you love. Or if you want to get on a waiting list for updates on my first ever well-being journal, please sign up to my Strong Mums mailing list here.

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    ✋ Hey there! I hope you’re feeling stronger now. If so, sharing the love will help me help other mums with mental health and/or chronic invisible illnesses.⬇  Hit one of those sharing buttons or save the images to Pinterest and I will do a bed-bound happy dance – there’s an image for you!