I've lived with Chronic Migraine and Idiopathic Intracranial Hypertension (IIH) since 2014. I’ve also had to manage Anxiety for many years.
I was a Primary School Teacher, Early Years Specialist and Mentor before I became disabled and mostly bed-bound from cruel and constant pain.
I share my experiences and provide tools and strategies to help Mums manage their live with invisible illnesses.
All tagged IIH
IIH or Idiopathic Intracranial Hypertension is a rare brain disease that I was diagnosed with in 2014. I want to share how brain fog affects me as someone with IIH headache. Brain fog is not a medical term, but a term for those who experience a groggy mind. I’m going to explain how brain fog and headaches impact my life and share my tips for better managing the symptoms of brain fog.
Reflecting on my IIH or Intracranial Hypertension treatment, as it comes to an end, has been emotional. IIH is a rare and disabling brain disease and I’ve hoped for a life without constant pain Since 2014. My first procedure showed that I’d benefit from brain stent surgery, and I did. My ability to communicate which would have crushed my family if it hadn't improved and it did with each surgery. As I complete my treatment, the harsh facts are that I suffer daily but there are positives, mostly my ability to be a good mum and wife.
Life with chronic illness isn’t easy and can lead to depression. This is especially true when we know we need to make changes to our lives and realise that we have little to no control over our situation. I grieved my pre-illness life and couldn’t see how to overcome the challenges I faced.
Working with a professional let me know it was okay to feel and talk about being angry, sad and lost. She helped me recognise that my self talk wasn’t helping me move past grief and gave me the support I needed to overcome resistance to change.
I asked 6 amazing mums from the IIH UK Facebook support group, about their secrets as a mum with Idiopathic Intracranial Hypertension or IIH, to help other mums in a similar position. We’ve done this in the hope that we can fundraise for IIH UK during IIH Awareness Month by sharing how IIH affects us as and our children to raise awareness of this rare brain disease.
This story is about the impact chronic pain conditions have had on my life. I have a rare brain disease called Idiopathic Intracranial Hypertension or IIH, as well as Migraine, Hypothyroidism, Depression and Anxiety. The strategies I’ve used help me feel like a strong Mum as I emerge with my story despite the challenges I still face.
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