I've lived with Chronic Migraine and Idiopathic Intracranial Hypertension (IIH) since 2014. I’ve also had to manage Anxiety for many years.
I was a Primary School Teacher, Early Years Specialist and Mentor before I became disabled and mostly bed-bound from cruel and constant pain.
I share my experiences and provide tools and strategies to help Mums manage their live with invisible illnesses.
All tagged chronic migraine
When we face challenges, such as chronic illness, our body and mind work together. Our mental health is often being put last, which makes it so easy to get stuck in a negative mindset. This can lead to stress, difficulty solving problems, unhealthy relationships and poor mental health. But this can change with these 10 inexpensive or free activities, which are crucial for your journey of growth and will boost self esteem.
Every July in the UK Good Care Month raises awareness of the caring profession in the UK. in this open letter to my PA or Carer. I thank her for the Carers skills she brings to our family as a member of the team. I also aim to break some of the stigma attached to caring younger adults, especially Mums.
I feel incredibly lucky that that person over the last 5 years has been Sam and as I wish I’d known what I know now when I was offered a PA/Carer, I hope others know what skills or qualities to look for in a Carer. The core qualities a Carer needs are passion, courage, dedication and compassion. One day it could be you needing care or caring for a loved one.
Sadly, the message that the guidelines for assessing chronic pain in the UK should meet the unique needs of the individual is eclipsed by potential consequences of misinterpreted guidelines. It’s likely that this will become a blanket policy for all with chronic pain in the UK. This makes it highly likely that underlying conditions will be missed and pain relief will be withdrawn or not approved for those in desperate need. The guidelines are not mandatory but the chronic pain treatment UK could leave many with little or no quality of life.
Reflecting on my IIH or Intracranial Hypertension treatment, as it comes to an end, has been emotional. IIH is a rare and disabling brain disease and I’ve hoped for a life without constant pain Since 2014. My first procedure showed that I’d benefit from brain stent surgery, and I did. My ability to communicate which would have crushed my family if it hadn't improved and it did with each surgery. As I complete my treatment, the harsh facts are that I suffer daily but there are positives, mostly my ability to be a good mum and wife.
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