All tagged chronic invisible illnesses
Every July in the UK Good Care Month raises awareness of the caring profession in the UK. in this open letter to my PA or Carer. I thank her for the Carers skills she brings to our family as a member of the team. I also aim to break some of the stigma attached to caring younger adults, especially Mums.
I feel incredibly lucky that that person over the last 5 years has been Sam and as I wish I’d known what I know now when I was offered a PA/Carer, I hope others know what skills or qualities to look for in a Carer. The core qualities a Carer needs are passion, courage, dedication and compassion. One day it could be you needing care or caring for a loved one.
Sadly, the message that the guidelines for assessing chronic pain in the UK should meet the unique needs of the individual is eclipsed by potential consequences of misinterpreted guidelines. It’s likely that this will become a blanket policy for all with chronic pain in the UK. This makes it highly likely that underlying conditions will be missed and pain relief will be withdrawn or not approved for those in desperate need. The guidelines are not mandatory but the chronic pain treatment UK could leave many with little or no quality of life.
Carers Rights Day is a day for making Carers aware of their rights, where they can get help and support, as well as raising awareness of the impact caring has. The theme for Carers Rights Day 2020 is 'Know Your Rights'. Here I interviewed Lesley. who cares for her husband, about the stress she experiences as a Carer to raise awareness about Carers mental health.
This October has hit me hard with one of those feelings so familiar: chronic illness relationships and trust. I believe we go through seasons of connections and I’ve been burned too many times. These are my thoughts on the consequences of ending old relationships with friends and connections in online communities and changing up other relationships so I only have those that I need in my life.
For IIH Awareness Month, Amy has written this amazing guest blog about her experience as a 24 year old, newly single mum of a one year baby boy, recently diagnosed with Idiopathic Intracranial Hypertension or IIH after suffering from crippling hypertension headache. She’s written an open letter to IIH about her lonely challenge of living with this rare brain condition.
I asked 6 amazing mums from the IIH UK Facebook support group, about their secrets as a mum with Idiopathic Intracranial Hypertension or IIH, to help other mums in a similar position. We’ve done this in the hope that we can fundraise for IIH UK during IIH Awareness Month by sharing how IIH affects us as and our children to raise awareness of this rare brain disease.
MS Awareness Week 2020 UK began on Monday 20th April and is a chance to raise awareness of Multiple Sclerosis so I’m sharing information about what MS is, the symptoms and how it affects those living with this invisible chronic condition. Everyone affected by this neurological condition will experience it differently and will have varying degrees of symptoms so the MS Society wants to raise awareness of life with MS. They want to show how someone may be feeling on the inside, when from the outside they ‘don’t look ill’. raising awareness of the hidden side of this invisible illness, by asking people to share their stories of living with MS.
